Posts

New Video shortlisted in International Competition

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Well done Greg for this moving video, music composed and performed by him, also wonderful expressive drawings that convey emotion so powerfully! https://www.youtube.com/watch?v=i-HoS_A7wps A huge achievement to be shortlisted in an international creative art competition out of so many.people.: https://alpinefellowship.com/visual-art-prize “There are no words to describe caring for someone in agony for more than thirty years. This video was shortlisted out of over 1800 entries for the 2024 Alpine International Arts Prize.” There are no words, the only answer is love.

Cobweb Years

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  A beautiful love song, written by Greg, illustrated very movingly by this wonderful video. https://www.youtube.com/watch?v=56jFWXNA8iU&feature=youtu.be Love has always sustained us through the most difficult of challenges and desolate experiences.

When you have to say “Go Away”

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This is a document we published a while ago. There are can be so many ways that you can trigger deterioration or symptom exacerbation if you do not understand: 1. how to be with the person 2. when not to be with the person 3. and why that is necessary. It  was written shortly after my book "More Notes For Carers" and highlights how the most ill can easily be misinterpreted by Assessors plus the crucial importance of a Risk Assessment. https://stonebird.co.uk/goaway.pdf (Link to "More Notes For Carers". https://stonebird.co.uk/morenotes/index.html )

HOW TO BE ASSERTIVE IN ARTICULATING YOUR NEEDS.

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HOW TO BE ASSERTIVE IN ARTICULATING YOUR NEEDS. Linda faces major medical challenges this year, it is incredibly difficult working out how to convey her complex issues and needs to professionals so that they comprehend what she needs to keep her safe. It is so important that we do this, for the terrifying consequences, if they get anything, I stress “anything at all”, wrong are potentially life threatening or will trigger unimaginable suffering and deterioration.. We have to find some way to articulate what, let’s face it, is beyond incomprehensible to most people. I know we have done it before and we will do it again, only this time the stakes are much, much higher. This is bigger than anything we have ever faced. There is zero room for misunderstanding ahead, so it’s really serious. Day and night all of this is constantly on my mind. The stress, right now, is huge. Anyway, I was listening to the “Today” program this morning on Radio 4 and they had an airline executive on. He said som

Broken, a new song

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Here is a new song. It’s up best music with very powerful moving video about living in broken spaces. Words and music by Greg. https://www.youtube.com/watch?v=X4hBMpbvDdg&feature=youtu.be

You Can

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  YOU CAN It strikes me how there is no word to describe the many, like my wife, who have been ill and disabled for decades, 20, 30 years and more. What word could possibly expresses the death and breath of their suffering, their catastrophic losses, the appalling devastation of their life? A term like the “long term sick” is a hopelessly inadequate representation of the dire situation they are in. Add to that the extra burden many are forced to endure of being saddled for years with a vague diagnosis that has no boundary to safely define it, nor accurate physiological explanation or respect and you have “absent citizens” thousands, maybe millions strong, who knows, hidden in plain sight, thoroughly invisible. There is much awareness these days about the power of stereotypes reinforcing biased beliefs. What stereotypes, what biases, do terms like the “long term sick”, the “long term disabled”, the “bed bound”, the “house bound” conjure up about people?  What about the life wrecking inv

Very Severe ME : still a neglected illness.

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We are deeply moved to see this video of Channel 4 news interviewing Merryn Croft’s Mum about the true reality of severe ME. https://www.youtube.com/watch?app=desktop&v=pobf0RPlJuw&fbclid=IwAR1RsCDMhiCK3ephcQvVIilyXqC11bDtKPL04JyCYhjB_bZAV5VU2kihrmg We are reminded how important it is to get accurate information out into the world about this devastating illness that destroys lives. Here is a review and links to Gregs free booklet on the shocking history of ME and the psychiatric misdirection of a physical disease. https://www.positivehealth.com/review/strait-jacketed-by-empty-air?fbclid=IwAR3yHdxeb9NYnS12GBnV7seZR3q1doDZNp2ejmBjyy4vhNYd6cP2CxKjgmY